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The Ethics of Medical Data Donation

Engelsk Hardback

The Ethics of Medical Data Donation

Engelsk Hardback
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This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes.

Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one''s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations.

Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the  key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
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This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes.

Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one''s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations.

Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the  key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
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Se mere i:
Produktdetaljer
Sprog: Engelsk
Sider: 198
ISBN-13: 9783030043629
Indbinding: Hardback
Udgave:
ISBN-10: 3030043622
Kategori: Medicinsk etik og lægeetik
Udg. Dato: 12 feb 2019
Længde: 14mm
Bredde: 243mm
Højde: 163mm
Forlag: Springer Nature Switzerland AG
Oplagsdato: 12 feb 2019
Forfatter(e):
Forfatter(e)

Kategori Medicinsk etik og lægeetik

ISBN-13 9783030043629

Sprog Engelsk

Indbinding Hardback

Sider 198

Udgave

Længde 14mm

Bredde 243mm

Højde 163mm

Udg. Dato 12 feb 2019

Oplagsdato 12 feb 2019

Forlag Springer Nature Switzerland AG