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A Family Disease
- A Memoir of Multigenerational Ataxia
Engelsk Paperback
A Family Disease
- A Memoir of Multigenerational Ataxia
Engelsk Paperback

291 kr
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Om denne bog

Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate.

Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother''s suicide, Creighton''s memoir finds striking similarities and differences in their lives and traces a lineage of family trauma.

Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

Product detaljer
Sprog:
Engelsk
Sider:
202
ISBN-13:
9781476683188
Indbinding:
Paperback
Udgave:
ISBN-10:
1476683182
Udg. Dato:
25 jan 2021
Længde:
10mm
Bredde:
152mm
Højde:
229mm
Forlag:
McFarland & Co Inc
Oplagsdato:
25 jan 2021
Forfatter(e):
Kategori sammenhænge